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The cruellest disease

The day I was told that our son has cancer is a day that will never be forgotten. For us, this day was Sunday 28th January 2018 at approximately 1pm. I remember the word “leukaemia” so clearly like it was only yesterday. It was that word said, almost 12 months ago that shattered the life we had previously known, never to be the same again.

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The Strength It Takes To Step

It’s hard to wrap my head around that this time last year we first heard the words: “Your daughter has leukaemia”. This one sentence changed the course of our lives forever and whenever I am back at the Royal Children’s Hospital and see that stunned look on so many newly diagnosed parents’ faces that weight in my chest that I felt at the time brings a heaviness to my heart.

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Home vs Hospital

A quick recap …

My son Lochie was diagnosed on January 28 2018 with ALL PH+ Leukaemia and was admitted immediately to the Royal Children’s Hospital.

The first time we were discharged was after our most intense and difficult stint in late June.

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The Balancing Act

official registration of us a charity

This has been a huge week for Little Big Steps with the official registration of us a charity with the Australian Charities and Not-for-Profits Commission ( – in the subtypes of Advancing Health and as a Health Promotion Charity – and approval by the ATO for our charitable tax concessions and Deductible Gift Recipient status.

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Saturday 13 February 2019 @ 5pm

Melbourne charity Little Big Steps is using fitness watches to help children recover from cancer. Parents say the watches help sick children get motivated into moving and boost their health.


Saturday 13 February @ 7.30am and 10am

Melbourne charity Little Big Steps is handing out fitness trackers to a group of children with cancer at Princes Park to encourage them to be more active while fighting the disease. Co-founder Cindy Bakos states increasing physical activity in them is safe and effective in decreasing fatigue and improving physical function. She adds the results will generally improve the kids’ mental wellbeing.