Latest News - Little Big Steps

“Carpe Diem” Seize the Day

On the 20^th of October 2008 our 2 year old daughter, Kali, was diagnosed with Acute Myeloid Leukaemia. This is news you, as a parent, never want to hear. After the initial shock of it all and realisation that her treatment was going to mean long, gruelling hospital stays, over many months, I quickly turned my attention to a life long passion of mine, physical activity/exercise. How was I going to keep a little unwell toddler entertained and active over such a long length of time under such tough conditions?

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GARMIN DONATE 50 VIVOFIT JNR 2 ACTIVITY TRACKERS TO LITTLE BIG STEPS

The Little Big Steps charity idea was all sparked when co-founder Cass’ son Lochie was gifted a Garmin Vivofit Jnr for his birthday and it transformed his physical and mental wellbeing during cancer treatment almost overnight. By introducing a fun way to encourage physical activity and rewarding him for achieving these stepping goals, plus any chores he set, Lochie had the incentive to get moving again after being bed-bound for weeks.

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SUPER LOCHIE AND THE RADIOTHERAPY MACHINE – ANOTHER PETER MAC MOVIE STAR!

Peter Mac’s Paediatric Film Production program transforms a child’s radiotherapy treatment (which can be daunting) into a magical adventure to make it a bit less scary. Kids can choose to be a superhero or select one of their interests (like music) as the basis for a film about their radiotherapy treatment.

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im a princess - surviving cancer treatment

Princess Cancer

5 months of inpatient treatment

It wasn’t until we returned to our home environment, after Sienna’s 5 months of inpatient treatment at the Royal Children’s Hospital, that we could see how much she had changed.

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The cruellest disease

The day I was told that our son has cancer is a day that will never be forgotten. For us, this day was Sunday 28th January 2018 at approximately 1pm. I remember the word “leukaemia” so clearly like it was only yesterday. It was that word said, almost 12 months ago that shattered the life we had previously known, never to be the same again.

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The Strength It Takes To Step

It’s hard to wrap my head around that this time last year we first heard the words: “Your daughter has leukaemia”. This one sentence changed the course of our lives forever and whenever I am back at the Royal Children’s Hospital and see that stunned look on so many newly diagnosed parents’ faces that weight in my chest that I felt at the time brings a heaviness to my heart.

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Worry & Fear

As we step in to another big round of treatment, we are again faced with the uncertainty of what the future holds.

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Meaning-full relationships

We all inherently know that having meaningful personal relationships leads to us living much happier and more fulfilled lives, and I believe it is something that most of us do strive for on a daily basis – whether or not we succeed quite as often as that.

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Home vs Hospital

A quick recap …

My son Lochie was diagnosed on January 28 2018 with ALL PH+ Leukaemia and was admitted immediately to the Royal Children’s Hospital.

The first time we were discharged was after our most intense and difficult stint in late June.

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The Balancing Act

official registration of us a charity

This has been a huge week for Little Big Steps with the official registration of us a charity with the Australian Charities and Not-for-Profits Commission (@ACNC.gov.au) – in the subtypes of Advancing Health and as a Health Promotion Charity – and approval by the ATO for our charitable tax concessions and Deductible Gift Recipient status.

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